Sally Okun is the Vice President for Advocacy, Policy and Patient Safety at PatientsLikeMe in Cambridge, MA. She is responsible for patient voice and advocacy initiatives, participates in health policy discussions at the national and global level, and acts as the company’s liaison with government and regulatory agencies. She joined PatientsLikeMe in 2008 as the manager of Health Data Integrity and Patient Safety overseeing the site’s medical ontology including the curation of patient reported health data and patient folksonomy. In 2009 she developed the PatientsLikeMe Drug Safety and Pharmacovigilance Platform to meet adverse event reporting obligations of industry partners while collaborating in a social media environment.
Sally participates on numerous collaboratives of the Institute of Medicine’s Roundtable on Value and Science Driven Healthcare and the Committee on Core Metrics for Better Health at Lower Cost. Ms. Okun serves on the Advisory Panel on Patient Engagement for the Patient Centered Outcomes Research Institute’s; the National Quality Forum’s Person-centered Care and Outcomes Committee and the Scientific Advisory Committee for the Reagan-Udall Foundation's Innovation in Medical Evidence Development and Surveillance Program and the Program Advisory Board of the Schwartz Center for Compassionate Health Care.
Prior to joining PatientsLikeMe Sally, a registered nurse practiced as a community-based palliative and end-of-life care specialist and project consultant. In more than 30 years of practice she contributed to clinical, research, and educational projects with multiple collaborators including Brown University, Harvard Medical School, MA Department of Mental Health, Hospice Education Network, and the Robert Wood Johnson Foundation. She received her Master's degree from The Heller School for Social Policy & Management at Brandeis University. She completed study of Palliative Care and Ethics at Memorial Sloan-Kettering Cancer Center and was a fellow at the National Library of Medicine Program in Biomedical Informatics.